tag:blogger.com,1999:blog-917750191122834917.post6226693546304173683..comments2024-01-15T06:50:22.901-08:00Comments on Realidad TEA y diversidad : ENTREVISTA A CARMEN MÁRQUEZCristina parederohttp://www.blogger.com/profile/06964191803347480134noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-917750191122834917.post-87943706211406871612017-03-08T10:15:32.534-08:002017-03-08T10:15:32.534-08:00Pues si que es cierto que los sistemas de enseñanz...Pues si que es cierto que los sistemas de enseñanza se deberian adaptar a cada persona TEA pues desgraciadamente aun quedan muchos profesores o docentes que dejan mucho que desear a la hora de tratar a un o una TEAmis poemas sentimientos, pensamientos y experienciashttps://www.blogger.com/profile/16250270763915432328noreply@blogger.comtag:blogger.com,1999:blog-917750191122834917.post-22022827326993975562017-03-08T10:15:29.911-08:002017-03-08T10:15:29.911-08:00Pues si que es cierto que los sistemas de enseñanz...Pues si que es cierto que los sistemas de enseñanza se deberian adaptar a cada persona TEA pues desgraciadamente aun quedan muchos profesores o docentes que dejan mucho que desear a la hora de tratar a un o una TEAmis poemas sentimientos, pensamientos y experienciashttps://www.blogger.com/profile/16250270763915432328noreply@blogger.comtag:blogger.com,1999:blog-917750191122834917.post-36785442718087275722017-02-22T14:46:10.571-08:002017-02-22T14:46:10.571-08:00El problema que aquí se plantea no tiene que ver c...El problema que aquí se plantea no tiene que ver con una traducción mal hecha del español al inglés y viceversa. Tanto en inglés como en español se utiliza los términos persona con autismo (person with autism), personas autistas (autistics), personas con Síndrome de Asperger (asperger's syndrom)... etc. Yo mismo acostumbraba a usar todos estos términos sin darme cuenta que algunos de ellos implicaban, por definición, prejuicios y estereotipos añadidos. Fue con el tiempo, tras entrar en contacto con diferentes organizaciones y personas en pro de los derechos civiles de las personas con diversidad funcional (entre ellos los propios autistas) cuando me dí cuenta del daño que se hacía al utilizar unos términos y otros. Al fin y al cabo, siguen proliferando múltiples organizaciones que, aunque con buenas intenciones, utilizan términos que, a medio o largo plazo, pueden causar daño y aislamiento no sólo a los colectivos a los que pretenden respaldar y proteger sino aquellos otros que quedan excluidos o estigmatizados (aún más) por una visión patología y condescendiente de su manera de ser y de vivir. Todavía no he visto en esta discusión que aquí se mantiene los beneficios de utilizar el término Asperger o "persona con autismo". El autismo sólo intenta describir una condición neurológica intrínseca de la persona... no es una enfermedad, sino una manera diferente de ser, de vivir y de sentir. Ni más... ni menos. Por último, recalcar que, para que el propio avance se produzca en cuanto a derechos civiles y libertades de las personas con diversidad funcional, es necesario abrir foros de debate como este en donde todos puedan participar, aportar y dar sus opiniones. Eso sí, siempre desde el respeto y comprensión hacía otros puntos de vista, aunque difieran de los nuestros.Jose Ramón Núñez Rocanoreply@blogger.comtag:blogger.com,1999:blog-917750191122834917.post-61724948440469253542017-02-22T14:36:52.547-08:002017-02-22T14:36:52.547-08:00Hi Cristina, there is no need for apology as we ar...Hi Cristina, there is no need for apology as we are all here to learn from each other. It appears that neither you nor your colleague who posted the other comment appear to be aware of the meaning of the phrase, "person first language" and hence both of you keep bringing up the moot excuse of linguistic differences between Spanish and English to justify it. <br /><br />I am merely going to repeat here in brief what this term means to give you a context to understanding where both of you are missing the point if you think it is just about meaning lost in translation (which I assure you is NOT the case because Spanish speakers in autism rights themselves recognise the validity of this criticism).<br /><br />"Person first" language refers to any use of language in which a certain characteristic is described to be separate from the person (eg. "person with cancer" or "person with Ebola"). Many people on the spectrum who champion the civil rights movement for neurodiversity celebrate their neurodiversity and consider it an intrinsic part of themselves (the way being Spanish is intrinsic and we don't talk about "people with Spanishness" and the way we respect homosexuality to form an intrinsic part of a person, so we don't say "person with gayness" and instead we say "a gay man or woman"). That is what "person first" language means. It means using whatever language to refer to a person with a characteristic as that characteristic being separate to the person). Many on the spectrum feel that this kind of language reinforces societal perceptions that autism is a disease that should be removed or cured. So, it is not simply a question of language but rather a deeper complexity of the use of language that transcends the kind of translational gap you and your friend refer. Hence I suggested both you and your friend to read more about this on the English sites.<br /><br />I too once was labelled Asperger and I too, bought into the type of language and thinking that neurotypicals taught me. And there are numerous online posts where I did not think anything wrong with using "person first" language, largely because I was not aware that it was an issue at all. Part of my introduction into the neurodiversity movement was beginning with an profound study of the topical issues and reflecting on my own prejudices and ignorances. I have changed many things about the way I use language now because I have learnt to be sensitive to the terms that are potentially discriminatory or offensive. <br /><br />I see the same problem here in Spain where because universally ALL autism organisations are run by neurotypicals, people on the spectrum in this country only know how to think the way neuotypicals have taught them to think (eg. in using the Asperger label without pausing to consider if it potentially feeds prejudice against others on the spectrum). All I request is that Spanish people be made more aware of these issues, which are now commonplace in the English speaking world. You and your colleague appear to be rare examples of Spanish people with a good command of English. You could put that to invaluable use for the Spanish speaking world by transmitting the messages of the neurodiversity civil rights movement from the English speaking world. <br /><br />A racist is someone who harbours a specific grudge against a race of people. My observations of Spanish autism would be the same for any society I live in which demonstrates the same backward mentality, ignorance and prejudices. If I attention my commentaries on the Spanish, it is because Spain is where I live and hence, it's population is what I talk about. It almost feels like I am being a target for racist attacks because I see dozens of Spanish people making social commentaries about the Spanish in your news daily and that is not considered racist. But I am attacked and accused of being racist for making similar social commentaries purely because I am a foreigner. It is something worth reflecting.Vinothini Apoknoreply@blogger.comtag:blogger.com,1999:blog-917750191122834917.post-82391732881288580222017-02-22T13:35:43.669-08:002017-02-22T13:35:43.669-08:00Hi, I’m the author of the blog. I have seen the co...Hi, I’m the author of the blog. I have seen the commentaries about the appropriate use of language and inclusiveness in my blog.<br />First, I would like to apologize if my vocabulary or the ways that I wrote something offended someone.<br />But I would like to make some things clear: I agree with the other commenter that, basically, in a field as big as language, what sounds offensive in one language is not in other; point that many would agree on, specially people wich understands more than one language.<br />The origin of the different languages, the oral or written transmission, the cultural and political changes within countries or areas, condition our use and shape of language, creating numerous differences, subtexts and meanings that Google Translate can´t understand.<br />As I’ve said many times in this blog I cooperated as a volunteer or as a speaker in numerous organization in the country, and the most developed of them use a similar language to talk about this.<br />I have always tried to have a diverse bibliography. Many times I’ve used international authors because most of the useful information about autism is, sadly, not in Spanish. A basic example is my use of the word Diversity (rarely used in Spanish today) to talk about this issues.<br />Again, I apologize, and if you show me that I’m doing something wrong I would do my best to fix it.<br />Cristina parederohttps://www.blogger.com/profile/06964191803347480134noreply@blogger.comtag:blogger.com,1999:blog-917750191122834917.post-36583146727487987082017-02-22T11:36:56.349-08:002017-02-22T11:36:56.349-08:00I suggest that you (and everyone) consider using G...I suggest that you (and everyone) consider using Graham's Pyramid of Disagreement the next time you (or anyone) wish to refute a point. It avoids effort wasted in petty insults and aggression (which typically dogs many online disagreements) and allows for a truly intellectual and constructive discourse.Vinothini Apoknoreply@blogger.comtag:blogger.com,1999:blog-917750191122834917.post-14925558408943881552017-02-22T11:29:07.025-08:002017-02-22T11:29:07.025-08:00I have merely undertaken my ethical duty in speaki...I have merely undertaken my ethical duty in speaking out when I see prejudice. The comments I posted are reflective of the views of a significant proportion of the neurodiversity civil rights movement, not only myself.<br /><br />What each person chooses as a course of action AFTER being made aware that a certain practice they undertake is discriminatory, is entirely up to them.<br /><br />The fact that you were labelled Asperger has nothing to do with your ability as a human being to use your intellect to analyse new ideas you encounter, research about them and then choose the ethical path you wish. The greatest enemies of Martin Luther King were not white Americans; they were African American. The worst critics of Gandhi were not British; they were Indians who supported the British status quo. The people who have most held back the gay rights movement were not heterosexuals; but other homosexuals. My point? It is a common mistake for people to assume that just because they belong to a discriminated group (eg. like your identification as being "Asperger" and therefore part of the spectrum), they assume they are immune to prejudices against that group. The term for this is internal prejudice and is well-recognised in history. I have seen far more prejudice by people within the spectrum against each other than from neurotypicals.<br /><br />As for your point about Plena Inclusion, don't forget that for hundreds of years, religion, experts and establishments insisted the earth was flat. That didn't make them right. Be careful of blindly accepting the status quo, just because it is coming from a widely-respected individual or organisation. One of the great threats in autism currently is the proliferation of false prophets spreading false knowledge. <br /><br />I recommend that you use your knowledge of English to acquaint yourself with the main themes of the neurodiversity civil rights movement in English literature (an area that you appear to have little knowledge of at present- as evidenced by your comments on person-first language and the Asperger term).<br /><br />Most importantly, I suggest that you understand that encouraging thought and open dialogue (which is my aim with my comment) is far healthier than the current aggressive and abusive response you posted (brusquely rejecting outright an idea just because it is new to you and takes you out of your comfort zone).<br /><br />Let this not be about you or me.<br />Let this be about promoting a thinking society that truly fosters diversity. <br />Let this be about encouraging dialogue, not shutting it down.<br />Above all, let us always maintain respect even if we do not share identical views.<br /><br />Gandhi once said about new ideas - "First they ignore you; then they laugh at you; later they fight you and eventually you win."<br /><br />Try to avoid the standard knee-jerk animal instinct of attack we humans revert to when we encounter something new.<br /><br />Try to first understand the civil rights movement of neurodiversity and then you will understand that the comments I posted do not originate from me, but that I am merely a conduit allowing the Spanish-speaking world a glimpse into the topical issues of this movement in the English-speaking world.<br /><br />My duty as a person is simply to initiate a dialogue which is currently largely non-existent in the Spanish-speaking world. I am not here to force anyone to my point of view. But in order to make an informed choice on a political issue (which is what autism is today), one needs to be aware of ALL points of view. And that was all I attempted to do here - provide information. <br />Vinothini Apoknoreply@blogger.comtag:blogger.com,1999:blog-917750191122834917.post-82883487375928918492017-02-22T00:40:36.366-08:002017-02-22T00:40:36.366-08:00Good morning
I am afraid you have misunderstood t...Good morning<br /><br />I am afraid you have misunderstood the language of the post (and of oher post). The autor always tries to be as inclusive as she can. She never uses the word disability for example, but diversity. Also i dont think you understand the meaning of some things in spanish or the meaning is distorded when translated with google. You mast always realize that the two languages are different and even with a direct translatión, words dont always mean the same.<br />"Persona con TEA" (person with Autistic Spectrum Disorder) is considered one of the most inclusive ways to refer to any autistic person in spanish. Is widely used by organizations like PLENA INCLUSIÓN wich is one of the most strong organizatións that advicate for self representation and total inclusion.<br />If she has made some mistakes in other posts, i dont think they are big enough to deserve such criticism.<br /><br />I see also that you take issue with the use of the word Asperger as being classist and creating and artificial divide in the movement. I completely disagree with that. Being Asperger does not makes us better in anyway (im an Aspie myself) nor we do claim that and if anyone thinks it outside that is not our problem and we should not let external opions guide our choices.<br />Many of us, Aspergers or not, try to improve the lives of everyone else bscause we know that we are equal, even if we are different. And its not bad to acknolewdge that difference, because it will help us to better help every person.<br />An example of this will be to say that lesbians cant say that they are lesbian because it is classist because they have a bbeter image in the media than transsexuals. It is not something they control and it will be disrespectful and patronazing to tell them how to label theirselves.<br /><br />The thing with i have the biggest problem is your "racism" agains Spain. Making broad criticism over a whole contry like that always comes across as missinformed and bigoted. Things like that make people stop paying attention to you.<br /><br />I believe you intentions are good and that you try through activisim like this to create a better world, but the way your are doing it only can cause people to stop listening to you and to others, making the problem worse.<br /><br />Sidenote: Thanks for the suggestion of the ASAN website!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-917750191122834917.post-21005508380348334772017-02-21T14:45:29.233-08:002017-02-21T14:45:29.233-08:00Vino España:
Soy un hablante de inglés usando Goog...Vino España:<br />Soy un hablante de inglés usando Google translate para publicar este comentario en español, así que por favor disculpen cualquier error gramatical. Deseo señalar al autor de este blog que la frase "persona con autismo" es considerada ofensiva y contraproducente por muchos en el movimiento de derechos civiles de la neurodiversidad. Además, muchas de las preguntas siguen enmarcando al autismo en el contexto de ser una patología médica. Esto es lamentablemente común en España, donde las mentalidades sobre el autismo parecen estar por lo menos 30 años atrás del resto del mundo desarrollado, donde el diálogo se centra cada vez más en el autismo como una cuestión política y sociocultural. Por ejemplo, ya no se considera aceptable utilizar frases como la "condición" homosexual cuando hablamos de diversidad sexual, así que ¿por qué seguimos hablando de la "condición" del autismo cuando hablamos de neurodiversidad? Carmen es una persona que hace un buen trabajo incuestionable, pero siento que la manera en que las preguntas aquí se plantean sólo alimenta opiniones anticuadas y prejuicios del autismo. Otro ejemplo es el uso de la etiqueta "Asperger", que en sí misma es clasista y discriminatoria porque impone una división artificial de personas en el espectro, que debe ser una comunidad igualmente merecedora de respeto, independiente de su CI o habilidades. Recomiendo a la autora que lea algún material sobre el movimiento de derechos civiles de la neurodiversidad para actualizarse sobre el autismo en el resto del mundo desarrollado (por ejemplo, el sitio web de ASAN, una de las organizaciones de autopromotismo autísticas más influyentes del mundo)Vinothini Apoknoreply@blogger.comtag:blogger.com,1999:blog-917750191122834917.post-68441136434992855322017-02-21T11:21:16.679-08:002017-02-21T11:21:16.679-08:00Agradezco que haya profesionales como usted señora...Agradezco que haya profesionales como usted señora Carmen. Le espero mucho exito en el futuroAnonymousnoreply@blogger.com